8.14.2007

Food Allergy Madness

allergen-free potato sticks aka french fries I can eatDear Gentle Readers,

I finally got my Spectracell test results back as well as the extended food allergy panel (testing an additional ninety-five foods/spices/herbs).

The good news is - I am only deficient in vitamin B 12, B 2, and the antioxidants selenium, vitamin C and E. Easy enough to take care of, I think. (I even managed to find a gluten-free milk-free soy-free egg-free vitamin E yesterday! ;) No small feat.

The allergy news is - I have even more additional foods to avoid due to severe allergy:

Coconut/coconut milk, cashews/pistachios, pinto beans, chick peas/hummus, navy beans, summer squash and zucchini, red bell peppers, melon, alfalfa sprouts, okra, mustard, curry, ginger, turmeric...

I also have a moderate allergy to brown rice (but not white rice!); so that makes my daily staple of rice milk now off limits; I now need to rotate any food containing brown rice [such as my pastas, my brown rice vinegar, protein powder, baking mixes, etc.] to once every four days. I did find some white rice pasta and quinoa pasta at Whole Foods, along with white rice and tapioca flours (for which I tested negative).

MY NP told me to avoid all nuts at this point (well, yeah - I'm allergic to all except pecan) just to be safe...and beans. The only legumes I'm not allergic to are lentils and lima beans.

The saddest part - for me - is having to let go of almost all of my favorite recipes. I have 200 recipes posted on Gluten-Free Goddess blog! Now most are off-limits to me. How ironic is that?

That said, Babycakes, I am stoked to know these additional troublemakers. Many of them are really not a total surprise. When I look back, knowing what I know now, my body was giving me various signals about these pesky irritants (though some are nearly impossible to discover - hidden as "Spices" and "Natural Flavors" so ubiquitous in foods).

Hiding under the umbrella of "Proprietary Blend" anything with "spices" and "natural flavors" must now remain off limits - as a hesitant voice on the phone this morning explained to me regarding Emergen-C Cranberry Flavor vitamin and mineral powder, "Proprietary blends might contain" an allergic ingredient such as ginger, lemon or pineapple extract, but she's not at liberty to tell me if the blend indeed does or does not contain ginger, lemon or pineapple. Why? Because well, "It's proprietary."

So the company formula is protected but the consumer is not?

What I wish?

I wish that - looking back to six years ago - my doctors had understood celiac disease and malabsorption better; and that s/he had ordered additional food allergy testing back then.

I might have healed faster and even avoided developing some of my additional food sensitivities IF I had been given the proper information six years ago, and eliminated problematic foods along with gluten, while rotating other moderate culprits.

Dairy, especially, comes to mind - I think I've been allergic to dairy all my life. Why should I be different? Fifty percent of celiacs are allergic to casein, the protein in cow's milk.

My message to you::

If you - or your children - have any (even minor) reactions to certain foods - mouth or tongue irritation, sinus drip or congestion, bloating and gas, digestive trouble including heart burn and GERD, headaches and visual migraines, hives, eczema, breathing difficulty - please, get tested.

If an allergy is not recognized, it keeps the body in a state of inflammation and the severity of symptoms may worsen over time. What may begin as a minor allergic reaction can escalate into anaphylaxis, or asthma, and at the very least, keep your autoimmune system on high alert and trigger chronic inflammation.

It also is vital to know that food allergies, such as a casein allergy, can cause symptoms similar to gluten ingestion.

So if you blame a rough day now and then on cross contamination or too much coffee, please pay attention. It just might be an additional food allergy. I wondered why, for instance, I still suffered visual migraines after going gluten-free. When I gave up casein in June, my migraines disappeared.

Here is where I had my food allergy testing done: Meridian Valley Labs. It's a simple blood test.

All in all - I'm relieved and happy to know the truth; and because I prefer *knowing* to *not knowing* I am already adjusting to my new restrictions. It's all good.

Last night we had wild caught salmon grilled with a quickie sauce I made with organic maple syrup, minced garlic, balsamic vinegar and olive oil. We roasted purple and gold potatoes with onion, portobellas, cubes of butternut squash, garlic, olive oil and sea salt.

How bad is that?

Love,

Your gluten, wheat, dairy, egg, soy, tree nut, peanut, coconut, chick pea, kidney-pinto-navy bean, green beans, brown rice, alfalfa, Brussels sprouts, chicken, turkey, mollusk, avocado, red pepper, sunflower seed, flax seed, stevia, lemon, orange, pineapple, papaya, raspberry, cantaloupe, honeydew, zucchini, red pepper, summer squash, watercress, okra, curry, ginger, turmeric, mustard FREE goddess.

Phew.



Karina's Kitchen: Recipes from a [Gluten-Free] Goddess Blog


49 tasty comments:

Blade Fam said...

I am so sad for you but I am now motivate to get my dary free soy free low gluten kids tested for additional allergies. Thank you.

Lea Ray said...

Thanks for the post. I keep experiencing an irritation in my mouth after I eat something. Now I will definately get tested. I can't figure out what I'm eating to cause it.

Kalyn said...

Ah (insert four letter word of your choice). But you are absolutely right that it's better to know. And as I was reading your post I felt completely inspired by your tremendous courage and good spirits through the whole experience. (That's only part of the reason why we all adore you so!)

SusanV said...

Oh sweetie, as soon as I started reading the list I thought "There goes Mulligatawny!" I'm so sorry, though it is definitely better to know. Is it possible that as you heal, some of these allergies will go away? I admire your courage, and I'm hoping there's a big light at the end of the tunnel.

Karina Allrich said...

Hi Blade Fam ~ Thanks for your kindness. And I'm glad to hear you will consider food allergy blood tests for your children - I am beginning to suspect none of these intolerances is isolated. And if you're going to go to the trouble of living gluten-free or soy-free or casein-free - why not make sure there's no other sneaky culprits that will muck up the healing process?

Hey Lea Ray! So nice to see you again! And as I mentioned above, good for you getting tested. Food allergies are more than simple annoyances - they can stimulate our immune systems. THAT, we don't need! ;)

Hola Kalyn! LOL! Yes indeedy. Insert word of choice. Which in my case would start with the letter F. ;) You are sweet and dear to my heart. Thank you - again - for your support and empathy. It means so much.

Oh Susan, I KNOW! As soon as I saw coconut on the test results sheet I thought: OH NO. No more coconut milk! No Mulligatawny? I don't suppose rice milk [which I need to rotate now and use only sparingly] would work? ;)

I can't answer you on the allergies "going away" yet, because we simply don't know.

For instance, I've been gluten-free and soy-free for six years, but I still show a moderate allergy to both. Even after six years of no exposure.

The weird thing is I also showed moderate to severe allergies to two foods I have NEVER eaten in my life - like lamb and persimmon.

Crazy, eh?

Bottom line - I'm already feeling better and eliminating symptoms, so I can already see big progress. And THAT'S great news.

Thanks, again, all of you, for your support and kind words.

xoxo

Karina

Dylan said...

Hey,

You are amazing!!! you must have to have so much endurance to be able to receive the news (about the new allergies) and still keep your cool.
allergies just make everything so much more difficult (especially if you work and need to make diner every day!) I'm blown away with your strength (I don't think that I would be able to keep my cool and keep living a happy and full life) if I was told that I can basically not eat anything.

keep up your spirits, it can only get better from here :)

Your humble gluten free blogger and friend,

Dylan

Joe Lewis said...

One of the reasons I was drawn to web design was the constraints. You have users on 800x600 screens and users on 1280x1024 screens. You have to make it work on seven different web browsers across three different operating systems. You need standards compliance, accessibility, usability, and by the way - you have visitors now coming to your site on their Treos, CrackBerrys, and iPhones. Better yet, your icons only can exist in a 16 pixel-wide space, and it must look like the photograph we sent you.

Given those constraints, it is fun and exciting (to me) to find art within this space. These constraints are begging to be broken.

I first saw my gluten intolerance as a major problem, but now see it as a creative challenge. I'm about 50% sure that I have a few other things I need to cut out of my diet to feel better, not exactly sure what, but really I'm no longer afraid of it. What could be worse than being told you can't drink ale anymore? If they ban me from the grape, I'll just take up mixology and bust out my shaker.

K2 said...

I was just diagnosed with Celiac's yesterday and after wailing and reading medical sites and wailing some more...I found your blog and it has cheered me up to no end. You really are the Goddess of Allergen Free Cooking! Your blog is gorgeous, and I've put it in my favorites list as well as sent it to my Mum :) Thanks so much, Karina.

Katie

ChupieandJ'smama said...

After everything you've been through, your spirits seem to be up and I'm so glad for that! I hope all of this new information is the final piece of the puzzle that you need to put your health back in order.

Alanna said...

: - ) Supper sounds GREAT. : - ) you've got this thang wrangled to the ground, now. And you keep opening my eyes, for this I send thanks ... along with a hug.

kerrdeLune (cate) said...

Karina my sweet, this sounds like me - I am currently allergic to so many food items that the list (which is expanding by leaps and bounds) makes me dizzy. In the circumstances, this lovely wise place is a true Goddess-send, and how I thank you for it.

I wanted to comment at "A Painter's Kitchen" this morning, but I could not as there was no "comment" button when I was there. The latest entry at APK is magnificent, and it sounds like me too. Much love, Cate

Karina Allrich said...

Hey Dylan! Thanks. As long as I can feel proactive I can cope. I've always been resilient [though I have down days, too, just like everyone].

At this point in my life I am ready to move on and feel my best. Feeling good is more important to me than any particular food. ;)

Joe, I appreciate your metaphor. When I went first went gluten-free I likened it to painting with a limited palette - which I did at the time. I mixed all my colors from only five: ultramarine, cadmium red, cadmium yellow light, ivory black and titanium white. Once in a while, I'd treat myself and use alizarin crimson. ;)

And as far as ale - have you tried the Redbridge lager? It's pretty damn tasty.

Hi Katie! Welcome! I'm so glad you found GFG. Tears are part of the healing process. We've all been there. It gets better. And with time and experience you'll soon be a pro. Hang in there. [HUGS]`And thanks! :)

Hi C&J's Mama! Thanks so much - you know, it really is good news. I was anxious to fit the last puzzle piece and get on with this whole healing thang. :)

Hi Alanna! Thanks so much. And you would have liked the supper. Right up your alley. ;)

Dear Cate... Oh my - you, too? Have you had a blood test? It cuts to the chase. For too long I tried intuiting the culprits but after awhile it seemed nothing agreed with me.

What I discovered was that some foods I took for granted as being fine [like avocado, lemon and eggs] were actually among the worst offenders.

Our bodies can get so out of whack that becomes impossible to winnow out the particulars. Not to mention - delayed reactions!

Thanks for your kind words on my A Painter's Kitchen piece - I removed Comments from that site recently.

Take care and be well, my friend. xoxo

Thanks again - everyone. My hope [with this post and discussion] is to help others out there struggling with nagging symptoms and unexplained health issues.

Karina

GrewUpRural said...

For the past few months, I was still feeling sick despite following a strict gluten-free diet. So I decided to cut out dairy.

I am feeling better, but for the past few weeks, something in my mind kept saying to get tested in case there are other allergies. Your post made me realize that I will definitely go get tested. As you stated, I rather know than not to know. --Monica

Sarah said...

Karina, my heart is going out to you! I completely sympathize-- I've also been given the Great Big List and had to go back and look at my kitchen with new eyes.

You're doing a wonderful job, though. When I get discouraged I try to think of gluten/allergen-free cooking as something similar to writing sonnets-- you have complete freedom within very clearly delineated boundaries, and those boundaries are what make it an art form and give it its beauty.

and SHAME on companies that won't give their customers basic allergen information. That's just outrageous.

Sarah said...

just added your wonderful blog to my blogroll, btw! :)

Loztnausten said...

Thanks for your openness in sharing, Karina. Our family is intimately acquainted with the struggle and frustrations that you're experiencing right now...particularly with the intractable nature of the food industry. I, too, wish that the medical industry were more versed in guiding us through this, but unfortunately, I find most "patients" to be better educated than the doctors in this area. Keep educating yourself and keep us updated on how you are doing!

Slacker Mom (aka Mrs. GF) said...

Karina-
On the mend...still on your way up. So glad you have the fight in you to keep on chugging.

You got pluck.

and you are still educating others, helping others.

As I have said countless times...

You go girl!!!

;)

Marie said...

Thank u for sharign this. I have ben trying to get my DH tested for some time. I am goign to have him read this. and maybe he will see how inportent it is.

KE said...

Hi Karina -
I've been lurking around your blog for a while now - I have to say I love your experimentation with bread and bread machines. I just got one and have been eating way more than is good for me:) I got the allergy blood panel done shortly after I was diagnosed and it was amazing how even better I felt. I always thought pineapple burned my mouth because it was acidic, but I'm allergic! In retrospect, its so obvious. Ah well. Its amazing how used our bodies get to feeling bad. I hope you feel so much better now and thanks for being so helpful and inspiring!

Allergic Girl said...

good for you for sticking to it, finding the right medical professional to help you sort out your difficulties and for all of your follow through.

basically im saying yay YOU! i know you start to feel much better very soon...

Karina Allrich said...

Hi Monica! Yes, it really is better to know than not know. And a blood test takes the guess work out of it. For instance, perhaps cow's milk protein is a problem, but goat milk protein is not - a detail "good to know". I was happy to discover, for instance, that oats are fine for me. That was a bit of *good news*. ;)

Hey Sarah! Sonnets. I like that. And it is so true. Thanks for your kind words. And good luck with your own Big List!

Thanks, Loztnautsen. I agree. Too many times I knew more about celiac disease and it's implications than the doctor [and a dietician I once visited].

Oh Slacker Mom, you are the best. Pluck? Cool. I'll take it. ;)

Hi Marie! It really is important. I wish I had been tested years ago. If I had been - not only would I have healed faster, I might have avoided developing so many additional food allergies. Good luck!

Dear KE: My favorite line in your comment? "It's amazing how used our bodies get to feeling bad." True! Yes. Glad you're feeling better. :)

Thanks Allergic Girl! I know you know. I know you've been there.

We must be proactive in our own healing. We must research, question, keep notes. And most of all - when our doctor is unwilling or ill informed, FIND a new one.

In my case, I found a certified Nurse Practitioner who "gets it". Finally.

Thanks, everyone! Be well.

Karina

Freckled Face Mama said...

The truth is always best. Now you can formulate a superb plan to tackle this "issues" and make something beautiful. Keep doing what you are doing. It won't be easy but those things that are great are hardly ever easy. :)

Freckled Face Mama said...

The truth is always best. Now you can formulate a superb plan to tackle this "issues" and make something beautiful. Keep doing what you are doing. It won't be easy but those things that are great are hardly ever easy. :)

Cindy said...

Bless your heart! I'll keep you in my prayers, but I know this will just be a challenge for you to now master recipes which are free of all of your allergens! You are a continued inspiration to myself and many others, keep up the good work- we're all behind you!

http://cindalouskitchenblues.blogspot.com/

An artist name... Danielle said...

Karina,

I’m sorry to hear about all your food allergies, but I understand completely what you are going through. I have celiac and adult asthma. I avoid all meats, nuts, soy, mold-based veggies, and cow dairy. I rely on goat dairy, hemp, organic veggies, Alaskan salmon, liquid vitamins, and my enzymes during each meal. Unfiltered apple cider vinegar is another great way to help the digestive system. Good Luck to you…you have given great insight to those who really need it…like myself!
Thanks,
Danielle

Karina Allrich said...

Hi Freckle Faced Mama! Yup. The truth will set you free. Allergen free. :)

Hey Cindy! Thanks so much.

Danielle - Wow - you have your own Big List as well. It is a challenge - and hardest on days when you're hungry and have not planned ahead [or are stuck in the car running errands].

I've still not tackled the "planning ahead" part very well. Some days there's plenty to eat in the house - potatoes for potato salad made with olive oil, polenta, fresh veggies, smoked salmon - but other days I come up short. Nothing to eat for lunch but carrot sticks because I've been busy writing and not paid attention to the pantry.

Ack! ;)

Karina

GFCF Mommy said...

My son went through kind of what you are going through now but at the tender age of 3. I really appreciate and echo your encouragement of parents to have children who show food allergy or intolerance symptoms to get them tested. Parents should follow their instincts based on the observation of their children.

Hugs to you too Karina. You are doing great and I know it is hard at times.

Didn't know where to say this, but your slide show is gorgeous. You are the Gerogia O'Keefe--or something like that--of GF food photography!

Katherine
www.gfcfmommy.blogspot.com

Karina Allrich said...

Hi Katherine! Thank you so much - for the kind words, and the *knowing* support. I appreciate it. ;)

And thank you for the slide show thought - wow! Georgia has always been a hero(ine) of mine, so I am tickled pink.

xoxo

Karina

Dana said...

We just got some simple blood/skin prick test done. Now I'm thinking to go back and get what you had. I never feel 100% and might have more allergies than I think. Thanks for the post.

Randy Russell said...

I have been gluten free since 1993, but no doctor I've seen since then, even when being diagnosed with an ulcer, has suggested that I be tested for food allgeries. Reading this-- it makes a lot of sense that I do so. I would like to say I will right away, but since I will be paying for it out of my pocket... soon.

Thanks!

Cindy said...

Karina,
If you don't mind me asking, how much did it cost to get the allergy tests (the A and E panels as well as the general test)? Did you use a doctor or pay yourself- I saw there's an extra fee if you go to them directly. If I did decide to use the same service, could I get you a referral bonus or discount?
Thanks for the info!

Cindalou,
GF, DF, and NF (sigh)

Karina Allrich said...

Hi Cindy,

The first Basic Set of 95 foods was $125. It checks the big ones: casein, whey, goat milk, soybean, almonds, walnuts, peanuts, fish, corn, gluten, oats...

The Extended Panel (with an additional 95 foods) was also $125.

I don't have insurance, so I paid out-of-pocket.

It was worth it, as I never imagined I was so allergic to almonds, cashews, lemon, avocado, pineapple...coconut! :(

I tried doing an elimination-style test on my own to figure out my culprits, but unless you literally start with one food, and only add one single element at a time - you're liable to miss the infrequent foods, or spices and flavorings - like mustard, or papaya, or ginger. And lemon - it's in "natural flavorings". Sigh. So how can you pinpoint exactly what you're dealing with?

And sunflower seed! Do you know how many foods now have sunflower seed oil in them, or the seeds themselves? Oy. It's a nightmare.

Good luck with the test - and let me know how you make out.

Karina

Karina Allrich said...

PS:: I went through my Nurse Practitioner - which cost $85 for the visit to order the test, then $85 to get the results - twice, because I staggered the two sets. So I don't know what the additional fee is, but it cost me another $340 to do it thru her.

Anonymous said...

Hi Karina, I've been looking at your blog for a while now and always enjoyed looking at your recipes and wonderful pictures! I haven't done a lot of cooking yet though, since I also have a lot of food sensitivities (wheat, eggs, milk, peanuts, soy, and recently corn). So I just came back today after almost a year to see how your blog was doing, only to find out that you have many more allergies - I was wondering if you have ever taken probiotics? You can get them in supplement form and they are good for the immune system. "Allergies" such as ours can be caused by a lack of beneficial flora in the gut. Taking probiotics consistently over time leads to a more balanced digestive system. They have helped me a lot though I'm not totally well yet - I am hoping that with time my system will eventually normalize, as these are delayed food reactions, not anaphylactic-type reactions which you are pretty much stuck for life with. So, I just wanted to make that suggestion in case you were not aware. Believe me, I know exactly how you feel.

Karina Allrich said...

Hi Anon, Thank you- it *is* heartening to realize you're not alone- that others have struggled with the same issues.

I was taking probiotics for years- unfortunately, my research this summer has uncovered that most probiotics contain traces of milk proteins, and if not milk, then soy. Which explains a lot!

I am on the look out for gluten-free dairy-free soy-free egg-free probiotics.

If you know of any, I'd appreciate hearing from you. ;)

Thanks for your kind comment.

Karina

Christine said...

Hi! I've just recently found your blog and love it! I found out about 6 months ago that I had both genes for gluten intolerance, so my family of 6 is now on a GFCF diet. I'm sorry to hear that you have even more allergies but its sounds like its just like finding out about celiac, now you have answers and now you can get well! Anyways I saw that you were looking for milk & soy free probiotics and wanted to let you know about the one my doctor recommended, Klare Ther-biotics. They are dairy, wheat, corn, soy, yeast, gluten, casein free. Also no sugar, starch, magnesium stearate, maltodextrin, artificial sweeteners, colors, flavors, salicylates or preservatives. Ah but it doesn't mention eggs :( But maybe something to check out? My doctor claims that gluten free is life long but dairy allergies go away in 50% of people, once their immune system isn't being attacted anymore. And most other allergies will go away too, hopefully that is true!

Karina said...

Hi Christine!

Thanks for the info- I'll look into it. And I hope you're right about the additional food allergies. It would be fab to be able to eventually add a few of those foods back into my GF diet. We'll see!

Take care!

Karina

Mistie said...

Karina, sorry for getting back to you so late - there is an allergen free probiotic available on iherb.com (a very reputable supplements site) called Dr. Ohhira's 12 Plus Probiotic Formula, just do a search there and read all the reviews. By the way, I too was taking probiotics for a while but didn't seem to get better, after doing plenty of research I found that I probably have a leaky gut (and with your celiac it's pretty much a given that you have it too) and this is why I have so many allergies to foods. There is an amino acid called glutamine which can heal it, it must be taken on an empty stomach though. Google it and you will see. I am just starting to take it. Even on PubMed there are good results on it - it has been shown to decrease intestinal permeability which will reduce our allergies. It is my understanding though, that this leaky gut must be healed first before benefitting from probiotics. Good luck!!

Wellness Coordination said...

Karina,

Thank you SO much for your amazing life sharing blog. I am the wellness coordinator for a prominent holistic center. My role there is often to help others live a healthy life despite food and environmental allergens and sensitivities. Your blog not only gives me a plethera of information to help these patients live a healthy and tasty life, it also helps ME deal with my own Celiac and Corn allergies, and Crohn's disease. Since finding your blog my life has been much more palatable :-) and I thank you for it immensely!

On a side note, I got the breadman machine with the GF option for Christmas and I can't wait to try it out! As soon as life gets back to normal I intend on making several tasty loaves. Any particular favorites you can describe (I know you've tried cinnamon raisin)?

rkentoff said...

Karina, I just found your website. I too thought that going gluten free would cure me of my ailments, but have had no luck with the elimination diets to see what else I am allergic to. Did you have the Spectracell test done at Meridian Valley Lab also? Are these two different tests? Any advice on how to go about getting the right tests? Thanks in advance.

Karina said...

Hi Mistie! Thanks for the info- and I'm living proof that the gut needs to be healed before probiotics work. After taking high quality probiotics for six years a test showed I had ZERO.

Eliminating the additional allergens has helped- I can tell (I'm gaining weight and have no symptoms). But I haven't bothered with probiotics yet. Soon. Again- thanks for the tips!

Hi Wellness- have fun with your new bread machine! Have you checked the bread machine post and discussion? Look in the left side bar links. It has a lot of info. If there isn't a mention of the cinnamon raisin bread in there, I'll add it (I forget- at the moment- if I wrote about it or not- sorry).

Hey rkentoff- Spectracell is in Texas. I went to their website (google it) and looked up practitioners who use their testing. From there I found a CNP who also used Meridian Valley (I had the allergy blood tests thru them).

That said, I think you could also simply find a good allergist who uses blood testing.

For me personally- the Spectracell showed typical vitamin deficits- the B vitamins, E and selenium. I knew I was also anemic.

The difficult part, for me, was finding supplements without my allergens.

In my opinion, food allergy testing is the first step. Eliminating the allergenic foods for six months to a year will heal the gut and decrease the inflammation. In the meantime, I just take basic B's and vitamin C (I've yet to find an an E without soy or other allergen). I cook with an iron pan, and eat meat now, for iron.

Hope that helps! Good luck!

Nabeela said...

I've recently been diagnosed with a lot of allergies too(most of your list is similar to mine) but since I'm not severely allergic to most things, I'm still eating them....its very hard to give up foods :(

JenJen said...

Hi Karina,
I have a few questions regarding your testing. I looked up SpectraCell Lab.s and found a clinician only a few towns over. But then you mention that you got your testing done at Meridian Valley Lab further down. In one of your responses, you wrote that you found "a CNP who also used Meridian Valley (I had the allergy blood tests thru them)." So, when I call this clinician, do I request tests from both Spectracell and Meridian? Or maybe I should ask how does Spectracell play into the testing, beyond finding a clinician?
Each day that goes by, I seem to have more and different reactions to more and more foods. Let the testing begin! Thanks so much, JJ

Karina said...

Hi JJ,

I elected to have nutritional testing (the Spectracell tests) to see exactly where I stood with my vitamin and mineral absorption/needs.

The food allergy testing was done thru Meridian Valley.

I found a CNP who used both labs. These tests have to be ordered by a doc/NP/ND.

So- basically- it's up to you whether you want to spend the extra money testing for vitamin levels, too. It's expensive, and frankly, I'm not sure I would do it again (it showed I needed B's, C, E and selenium, all in the vitamins I was already taking, but apparently not absorbing due to food allergies/ gut inflammation).

If I had to do it all over again, I would elect to have the food allergy tests done first, and then retest in a year (I was told I could retest in six months, but I decided to give my immune system a full year to settle down).

Then- after seeing where I stood on food allergy tests a year later, I would consider nutritional testing (if I still had symptoms).

I also had stool testing for candida, bacteria difficile, giardia, etc to rule out any other possible culprits. This is called functional medicine.

At almost nine months of allergen free living I am obviously healing. I've gained weight- and can even handle coffee again. Yay.

I wish every celiac would get tested for food allergies- so often a secondary condition caused by leaky gut. Food allergies- especially to casein- can seriously hinder healing.

Good luck and congrats on getting tested. I'm proud of you. ;) Let me know how you make out.

Karina

JenJen said...

Hi Karina,
First of all, thanks so much for your quick reply, it's very meaningful when you're dealing with food allergies, because it always feels urgent to deal with them.
Thanks also for clarifying about the testing. Financially it will make more sense to choose just one for now and you have made the choice clear.
So, next question! I have insurance and have a general practitioner as my regular doctor. Should I start there as far as finding a doc to order the tests? I noticed on Meridian Valley website that there's no search option to find doc.s that use that testing. So, I'm wondering how I would go about finding one, if my doctor doesn't do it?
I think that's it for now. I love that you (and all of your experience and knowledge) are on the web and you are a saving grace for celiacs. It's helpful to have friends in this crazy celiac world! Thanks again, JJ

Karina said...

Hi JJ-

You could try starting with your primary care physician (I didn't have one). If you have insurance, hopefully it is covered. I don't have insurance, so I just paid up front. The food allergy tests were about $125 for the first set; ditto for the second set I ordered after I saw how many foods I was allergic to (the in depth second set covers spices and other less common allergens).

I'd bet there are other labs who do food allergy testing- your doctor may prefer another lab. I recommend the blood test- not the skin scratch tests. I've read that a blood test is more accurate.

Though...

I just heard that Dr. Peter Green (celiac expert) doesn't think much of the food allergy blood testing in general; he believes that some of the antibodies that show up elevated can be raised by simply eating a lot of that food before the test.

I hope he's right. I'd love to find out that many of my "allergies" were simply due to over-indulgence that particular week.

So you might want to keep that mind, too. The week before you test, roatate your foods to get a more accurate balanced test result.

Take care!

Karina

JenJen said...

Wow, thanks, Karina. That was a lot of information and I obviously have a lot to consider in the testing options. I will have to start investigating and see how far I can get on my insurance first! Thanks again! JJ

Anonymous said...

Karina, I've been a lurking fan since November, when an antibiotic I took forced me off wheat. During those two weeks, I found that I COULD BREATHE AGAIN. Now that I'm three months gluten-free, I'm noticing that monosodium glutamate and its updated, renamed versions of itself are wreaking havoc on my GI tract. Who knew? I'm going to get food allergy tested in a few weeks, but my honest suspicion is that MSG, a chemical for which there is no allergy test because it is a _TOXIN_ , plays a far greater part in my acid-stomach-for-the-past-20-years than any food that comes straight from the dirt or other parts of Creation/Nature. I have no idea how I'll face that, since MSG and its derivatives are in EVERYTHING, but your post, including your wonderful new "tagline" (Your gluten, wheat, dairy, egg, soy, tree nut, peanut, coconut, chick pea, kidney-pinto-navy bean, green beans, brown rice, alfalfa, Brussels sprouts, chicken, turkey, mollusk, avocado, red pepper, sunflower seed, flax seed, stevia, lemon, orange, pineapple, papaya, raspberry, cantaloupe, honeydew, zucchini, red pepper, summer squash, watercress, okra, curry, ginger, turmeric, mustard FREE goddess), has given me LOTS of hope that whatever it is, it is do-able. Thanks for your recipes, and for your inspiration.

Martine Smith in Newcastle, OK
mamamartine@yahoo.com

BlueRose said...

Hi Karina! I am new to your site - but will return to keep reading. I too have multiple allergies - gluten and 30 + foods came back on the blood tests 2 years ago. When I got the results, I went out to my car and cried! After much learning and experimentation with alternative foods, I am more positive (and more healthy!!) now - and waaaaaay more CREATIVE with foods than ever before. It DOES get better.

One thing I didn't expect was for the allergic reactions (IGE reactions, especially) to worsen after being off of those foods for awhile. After unknowingly ingesting peanut traces in one bite of a Lara bar (foods manufactured outside the USA are not required to put allergy alerts on their labels), my mouth got tingly and I had intense abdominal pain and trouble breathing. That had never happened before!

Another word of caution to everyone - be aware of your stress levels. As a single mom, with a full - time job and part - time school, stress has been my constant companion. When I've experienced it at high levels, I found I could not eat anything without feeling sick. I also developed asthma and eczema flare ups. However, on breaks from work and school, I could get more sleep and rest, during which time my skin would heal and I could eat again.

Keep your eyes and ears alert, as there is more and more research being done on the immune system, gluten intolerance, and allergies. If you don't already have a good allergist on your team, it is worth the time and effort to find one.

I have also found that simplicity and planning ahead are the keys to surviving allergy cooking. The fewer ingredients in a recipe the better - especially when they are fresh and chemical - free (and higher in nutrients!). Tastier, too!

This is a lot, I know - but it can be done. Again - CREATIVITY!!! Good health and blessings to you and your readers. Karina, keep up the good work!!

Thank you sponsors!